Michael:
Another change I've noticed in the last ten years is your greater
awareness, and even activism, around social issues that affect the
blind. How did that come about?
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Joel:
I expanded my awareness of blindness issues on the Net, including
the 1991 Americans With Disabilities Act (ADA). There are several
national organizations advocating for the blind, and offering
services and training. They differ radically in philosophy and
character. One of them, you could take to the opera to banter
charmingly with wealthy patrons. Another is more a grass roots
pit bull of a group, given to charisma-driven internal cultishness,
pious rehabilitative rigidities and robust but inconsistent
political and legal activism. And I began encountering obstacles,
misunderstanding, and mistreatment. Such as that
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Joel
on the politics of adaptive technologies
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many
bus drivers in L.A. won't announce stops along their routes,
even if you ask nicely. So I call, I e-mail, I cc my city
councilman and district supervisor. And I get in drivers'
faces, as diplomatically as they deserve, or not. I think
it was Martin Buber who said, If I am not for myself, who
will be?
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Michael:
When you started running into people's insensitivities (and worse),
did you immediately see it in a larger social context, as I assume
the national organizations you mention do? Or did it feel more isolated
and personal, and therefore (I would think) overwhelming and lonely?
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Joel:
Maybe I'm just an incurable narcissist, but every slight or rebuff
feels personal at first, until I am able to generalize it. Then
I realize that society is not intending me cruelty, but is collectively
narcissistic itself. "Blind," so to speak. I am aware of the national
organizations with their support and advocacy agenda; their efforts
and official positions have deepened my understanding of these issues
of access and respect. But I feel that advocacy, whether at a personal
or institutional level, has first to attempt to educate and raise
empathy and consciousness, and only then, if resistance is met,
move to the adversarial legal and legislative arenas in which those
organizations excel. So far, I've been holding my own, doing my
own teaching and advocacy as I go, situation by situation. Much
as I appreciate knowing the national groups are out there, I hesitate
to join one.
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